And here is the “after,” the wig after a little breaking in and with no extra hair underneath. It really looks so much like my real hair. But, it feels like a step or two above American Girl doll hair. I’m a fiddler—I’ve always played with my hair, tucking it behind my ears, pulling it up off my neck… This is going to take some getting used to; long, curly, synthetic hair is not for a fiddler. I’ll never be able to run my fingers through this “hair,” so I need to learn to leave it alone. I’m ok with the scarf look, though, and I’m so glad the kids are, too. Putting on all this hair feels a little like playing dress up to me—it feels too fake. And somehow it makes me feel stronger to go out sans hair. So I’m betting this lovely wig may not get a lot of wear… And that’s ok.
Category: TNBC
Race Report
The Final Cut
Enjoying my coffee with Sally and Crystal on Wednesday, I ran my fingers through my hair like I always do. Only this time, I usually came out with a strand or two of hair. Thursday, it was several hairs at a time. I called to see when Dragan could squeeze me in to shave my head. Actually, I put off calling him for a couple of hours, I wasn’t ready. But he could put me before his first appointment on this morning, which would be good for Sally to meet me and the kids wouldn’t miss much school. I took the appointment, though still wasn’t sure that I was ready. But this morning, I was ready. Just washing my hair and attempting to blow it dry to go have it cut left far more hair on the brush and the floor than I wanted to deal with. That’s just what I needed to see, it was time.
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Dragan braided it and cut off the braid so that I can donate it. The kids did great, they’d wanted to come along. We had fun and not a tear was shed. Though, as Dragan prepared to start shaving, my compassionate little guy came over to love on me just in case I needed it.
Part of what made the day a success was the markers. Thanks to Ashley’s video, I thought to take along some washable markers for them to use to decorate my newly bald head. It gave them something to look forward to and they loved it!
I thought I’d be at least a little upset over the loss of my hair. But really, I’m ok with it. So far, I’ve gone out in my wig, a scarf, and even bared my bald head a little. I was completely ok with it, and so were the kids. They love to massage and pet my bald head! I was worried about their reaction, and couldn’t have been more pleased with how they’re doing. I knew that being without hair, makeup was going to be more important than ever to me. I’m so glad I took the time to do a good job, it really does feel like it made a difference. Since lots of people on facebook asked, this lipstick is my current favorite, Dubonnet by MAC. Seeing these pictures, I think a strong, bold lip will be important in the upcoming months, and I’m betting this lipstick will get a lot of use.
It shouldn’t go without saying that these images are so special to me. I worried seeing my hair fall to the floor might be hard. Mostly, I worried that I wouldn’t be able to hold it together if the kids fell to pieces. Watching Ashley’s video gave me confidence that we would do fine, and it made me realize that I wanted those special images of my own. I’m so grateful that Sally came along and captured this fun morning for us. I feel truly blessed to call this talented woman my friend.
Photography by Sally Brewer Photography
I Am Beautiful
I read a very compelling blog post today (thanks to Stephanie for sharing it with me!) by a woman who was determined to tell her daughters that she thinks she is beautiful. Having grown up with friends who struggled with eating disorders, I’ve always been very careful to make sure that Emma Clare knows that her value as a person is not linked to her beauty. But she is beautiful, and I tell her that often. The article questioned how we can expect our little girls to still think of themselves as beautiful young women when they remember their mothers constantly putting themselves down.
And so as I run my fingers through my hair and find each time that a few strands remain in my hand, I see cancer threatening my ability to tell Emma Clare I am beautiful. It will take my hair, it will leave me scarred. And yet I am determined that the author of this post was right. I am beautiful, and I will stay that way. Emma Clare will believe it, and if I say it enough, I will too.
The Best of Friends
Sally is a dear, sweet friend. I have a feeling that in the coming months, I’m going to learn even more about what it means to be a good friend by seeing all that she does for me. There are a few perks to having that dear, sweet friend also be a professional photographer. For one, I have some super fabulous family pictures! Another perk: meeting more photographers! Today we met up with Crystal of Lily B Photogrpahy, who took this lovely picture of the two of us. We had a great morning corralling kiddos and taking pictures, followed by yummy coffee at a favorite coffee shop. I really love this image Crystal captured of me by myself.
But the funny thing is I was really just posing to goof off a bit, Sally wanted to capture this image of her own:
Yes, Crystal took our pictures that close to a busy road while her infant hung out (pun intended!) in her Ergo carrier. Because that, my friends, is how we roll.
Awaiting the Next Round
I had a good visit at the oncologist’s office today. They did my bloodwork and all my counts are in the normal range, so I’m good to go for chemo on Thursday. We talked about how my last round went, I was eager to hear her opinion on whether my reaction to chemo was likely to change. She said that some of the fatigue may increase throughout the process, but the fact that I didn’t have any nausea and little bone pain was encouraging. She said it looks like I may not struggle with those side effects.
I feel so fortunate that my body is handling this so well. I’m also very thankful that I have the opportunity to take a good nap every day, I’ve no doubt that is making a big difference in how I feel. I realize how I feel could change any day, but somehow, every day that I feel well is such a pleasant surprise, a true gift.
I continue to pray that my body will be strong. But do you every pray for something that you know is kind of silly– not really important in the big picture, but it matters to you? This week, I’m praying extra hard that I’ll be able to run this Sunday in the Girls on the Run 5K with Emma Clare. (I should be able to– I’ve been running since starting chemo, so I’m ready!) We have been talking about it for a long time, and she understands that I might have to go slow or walk. She’s been dealing with my cancer diagnosis much better lately, but last week one night, she came downstairs after she’d headed up to bed, crying. She was worried about me. It broke my heart. We talked for a while, and I did my best to reassure her. After she was all calmed down and I was about to send her back to bed, she said, “I’m so glad you’re going to be able to run with me.” It’s kind of a big deal to me, but that’s mostly because I know it’s a big deal to her. So if you’re looking for something to pray for this week, I’m praying that I’ll be in great shape to run with her on Sunday.
A New Schedule
There’s not been much new to report in the past few days. I’m still feeling pretty well and certainly am not going to complain about anything. I did miss my afternoon nap one day, and I was pretty worn out, but that’s so much less bad than I’d expected. I also figured out after eating a bunch of fruit last night that my mouth might be getting a little sensitive, so I’m laying off things with too much acid for the time being. After that incident last night, all I could think about was how much I wanted a milkshake, so I stopped and got one today at Chick-fil-A– they make really good milkshakes! I made Sally taste it several times and she said she thought it might be a little “off.” I think my tastebuds might be starting to be affected though, it seemed a LOT off to me. At least I won’t end up gaining a ton of weight from all the milkshakes!
I was next door to the Chick-fil-A because I was picking up my wig. It still needs some breaking in, and it’s hard to really tell how it’s going to look since I have so much hair for it to cover right now. But I think it looks a lot like my real hair, so I was pleased about that.
This week was nothing like I’d feared, and so I’m eager to go to my appointments next week to find out if the week is an accurate representation of what chemo will continue to be like. I’m definitely back to the schedule one keeps with a new baby– do what you can in the morning because that afternoon nap is essential– but that feels like something I can handle. And I know that it might continue to get harder, but I’m so thankful for the unexpected gift of an extra good week.
My Prayer
I’ve said it before, but it really is overwhelming knowing so many are praying for me. I have to say, though, I’ve struggled at how to really pray for myself. I took solace in the passage from the Bible that talks about how the Holy Spirit prays on our behalf when we don’t know the words.
But on my run Sunday morning, I had time to really be by myself and think. I needed to know what to pray. And it occurred to me that God made my body, and he knew what it would need to go through. I have this cancer, and I have to go through the treatment. That will not change. So my prayer is that God will make my body strong. Strong enough to withstand these treatments with good health and a good attitude.
And so I’ve decided not to worry so much about the fact that I still feel pretty well. It seems wrong to be almost done with the second “bad” day still feeling ok. I’m going to enjoy my good days, knowing that the chemo is doing its job, and that God is making my body strong to withstand it longer than anyone expects.
Another Day
At this point, I’m taking things one day at a time, trying to make the most of the time I’m feeling well. And I got a special gift yesterday– an extra “good” day! My doctor had told me to expect that I’d start feeling a little rotten on day 5, so all day yesterday, I was waiting for it. And nothing! Today I got up and made us pancakes for breakfast, did a little sewing, and we walked down to the post office to mail a special package. Since it’s election day, the kids are off school, but they’re so good playing with each other and I’m feeling so well I cancelled the playdate I’d arranged and we’re hanging out at home. I’m going to take a nap in a bit, but am thankful for a nice sunny, productive morning.
And so I’m halfway through my second gift in a row. Another beautiful, unexpected, good day!
Me and Lance.
So it turns out that I now have a couple of things in common with famous, or should I say notorious, athlete, Lance Armstrong. Cancer diagnosis as a young adult and a love of performance enhancing drugs.
I’m a little bummed, today is my first day without steroids. Yes, there are side effects that make it undesirable to take them long term. But this weekend, even after getting all those nasty chemo meds, I felt good– great, even. Yesterday I rocked out my 5k– well, I ran the whole thing, at least. I feel pretty sure that I’ll make it to the Girls on the Run race in two weeks, but I don’t think I’ll earn any first place prize that will have to be stripped from me later. And the steroids cause me to be a little flush, like I’ve been in the sun or just finished a good workout, which Sally said was perfect for family photos yesterday. I’ll share a few of those here later on, they turned out great!
So today I’m waiting for the other shoe to drop. I’m running a couple of quick errands this morning and then I’ll be ready to hibernate for a few days if I need to.