I’m with stupid.

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I feel like this is the shirt I need lately. (Note to creative-type readers, this is not the tee that I want, I don’t really see myself wearing it, so no need to get all crafty and gift me one!)

When I got my port put in, they put it high on my chest just under my clavicle on my right side. For the first week, it was very painful. The constant pain eventually subsided, but it was always a bit of a sensitive area. I was relieved that the port would come out during my mastectomy, but then I went home with the tissue expanders. I had them just shy of six months, and for the entire time, my right side bothered me. It wasn’t unbearable, but the constant tightness was always tighter on the right, and the spasms that started to really drive me crazy at the end were always on the right side. After last week’s surgery, despite the fact that I was far more bruised on the left, there’s almost no pain or discomfort there. Any residual muscle and back pains (very minor) and most of the weird, tingly irritation is still on the right side! As I was telling Sally this, I mentioned the irony: the cancer was on the left. That explained it, she told me. I chopped off a perfectly healthy breast and now it’s getting even.

Fear Will Not Rule

20130911-205222.jpgGetting dressed this morning, I threw on my favorite tee along with a striped maxi skirt. It’s no surprise to loyal readers that I have a bit of a blog crush on Ashley from lilblueboo. I’m not positive but I think this design may have its origins from the time she was dealing with cancer. At any rate, I rediscovered this tee during my treatment and decided I needed it. I’d do what needed to be done, but I wasn’t going to let fear take over.

It really is a favorite tee, and I didn’t think a thing about wearing it today until this evening, when I was listening to a man recount the events of September 11, twelve years ago. I remembered that day, seeing the plume of smoke coming from the Pentagon from the window of my lab. Driving home on a street where it was uncertain if traffic was one way out of the city (like in afternoon rush) or two ways, like it usually is at that hour. Sitting on unpacked moving boxes in the living room of our brand new house, watching network coverage because we hadn’t gotten cable yet. And I remember a few days later, after the figurative and literal dust had settled, driving back to Georgetown and being greeted at the end of the Key Bridge by heavily armed National Guard troops. Those were scary days, and we all made a choice, whether or not we knew it. We decided that week. Fear will not rule.

Brighter Days

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(source)

After a long surgery Friday and a rough, sore Saturday, Sunday was the start of better days. By yesterday, I really felt almost normal lots of the time. I’m still tender in some spots, but the freedom of being without those awful tissue expanders is amazing. All of the muscle tightness and spasms are gone, and that’s a huge thing! I could tell the difference instantly after surgery and I continue to be amazed (and relieved) at how much different I feel.

I think I’m going to have to work pretty hard to follow all the rules– restrictions on lifting and activity– because it really doesn’t hurt when I get close to the limits. But if that’s the most I have to worry about, I count myself very lucky.

Recovery, Take Two

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Surgery went fine in Friday. I ended up being in surgery for almost five hours, but I like to think that’s because my surgeon is very thorough and wants to be sure he does the best job possible. I didn’t realize it right away, but that’s actually about as long as the original mastectomy. I didn’t need to stay in the hospital because the pain level was much lower, but it did take a while for me to shake the anesthesia. Having not eaten at all on Friday, I was shocked not to have an appetite until around Saturday afternoon. Even Sunday, meal time sort of felt more like I was going through the motions. For me, Pringles are the perfect post surgery food, light and salty, and they’ve been my go-to these past couple of days.

Speaking of pain, I really wasn’t expecting too much. It certainly wasn’t as intense as last time when I required a morphine pain pump to get through that first night. But the Percocet I took didn’t quite do it Friday night and I didn’t sleep well. Saturday was rough (though not at all unbearable), but thankfully that night the pain dropped off enough to let me sleep and Sunday was a much better day. I’m not supposed to lift anything over five pounds for a couple of weeks and reaching too high is tough at the moment, but I really do feel like I’ll be pretty much back into the swing of things pretty quickly. Back in the swing of things, that’s right where I want to be.

Surgery: Check.

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Maxi skirt: check. Reading material: check. And that’s about all I’m going to need for the next few hours. I’m checked in and waiting for my 9am surgery time, eager to get this last surgery checked off my list. And since I haven’t been sleeping great, I’m looking forward to some peaceful, drug induced sleep. But first: fall fashion mags. Which I get to read in peace. Not so bad, really.

Post Surgery Wardrobe

skirts

(This is one of the more pay it forward kind of posts– far more interesting to someone approaching this surgery themselves than to most. Feel free to skim if you’d rather not hear all about compression bras!)

The kids were back at school today, so I set off to get myself ready for this week’s surgery. Step one: coffee with a friend who’s been there. She brought along some encouragement, friendly advice, and these maxi skirts. For the record, I think some people look adorable in a maxi skirt, but I’ve never liked one on myself. I was thrilled that she would loan these to me since I didn’t see myself wearing them past the four week mark when I get to lose the almost to the knees bike-short style compression gear. When I got home, I set out to trying them, seeing which tops might go with them and cover the compression bras that I already have (though I’ll come home from the hospital with more)– the “nice” one I got at Nordstrom but couldn’t really wear after the first surgery, and the awful one from the hospital. The one from Nordstrom is a bit more streamlined, but it’s cut a lot higher and didn’t have quite enough compression the last time around. The icky hospital one is lower cut but has a lot of velcro that bunches and flips up in really awkward ways. To deal with that the last time around, I took to wearing a sports bra over it– just to keep all the flaps down. My secret weapon? An XL undershirt from the little girls’ section. Tank tops from the women’s section are too low cut and show the bra, but these from the little girls section are great for layering to cover the top of the bra. The last step will have to be all those scarves I wore to cover my bald head last fall, wrapping those around my neck will help hide some of the bulkiness of the bra. I was lucky to be able to wear bulky sweaters after my last surgery, but I’m not willing to wait for colder weather for this surgery, so when it comes to my wardrobe, I think it will just be a make it work moment.

Countdown

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I’ve never been the cross the days off the calendar type of gal, but I’m getting dangerously close to that point right now.  Two official countdowns going on in my mind– six days until school starts and ten days until my surgery.  This last week before school starts is usually long and short at the same time– long because it is the last week and we’re all ready for them to get back to school, yet short as we try to squeeze in every last bit of fun. One afternoon already this week, I spent some time at the hospital, getting ready for that second countdown. Once again, I answered a battery of questions (Do I have heart problems? Do I have kidney problems? Has anyone ever noticed that I stop breathing when I sleep?) all with a “no,” and was thrilled to be able to say that I am taking no medication at all.  The nurse remarked that I was easy, so healthy. Well, healthy except for that pesky cancer.  Anyway, after a quick blood draw, I was on my way home, ready for next week’s surgery.  I go back and forth, questioning the wisdom of scheduling surgery for the first week of school, but really, I am so eager to have this finished that it would have been a struggle to wait any longer.

This procedure will be outpatient, and since I’m the first procedure of the morning, I should be able to beat the kids home and maybe even get a nap, too.  The recovery isn’t supposed to be too bad, all of the muscle cutting/rearranging/stretching has already happened, and that’s the painful part.  This is just a swap out– trading the tissue expanders (which have done their job but I hate) out for my “real fake boobs,” the implants that are my final step in the road to normalcy. I’m also having a little bit of liposuction, oh yes, ladies, you can be jealous, for fat grafting– he’ll use that extra fat to strengthen weak skin and give me a more natural appearance overall. I’m sure I’ll have some lifting and exercise restrictions (and I’ll be in all that lovely compression gear) for at least a month or so, but my doctor said I can expect to be pretty much recovered in a week.  Which is good, because as soon as school’s in session, my calendar really starts to fill up, and I’m looking forward to a fun, and healthy, school year!

 

New Hair | New Earrings

then and now blue dress

Sally took the picture on the left two years ago when our families vacationed together at the beach.  The picture on the right was taken this summer in Old Town. I really do love that dress! Emma Clare saw the older one recently and remarked that it hardly looked like me.  “I sure had a lot of hair there, didn’t I?” Her reply, “Well, yeah.  And you look a lot younger.” Thanks kid.  Anyway, I thought I’d use the two side by side to demonstrate how my taste in earrings has changed.  I stopped wearing the big hoop earrings as soon as I shaved my head– with a scarf tied around my head, I felt like a pirate.  No thank you.  I still held onto my other favorite big earrings, though, I think the fact that the scarf I usually wore had a long tail made it still feel like I had long hair. Now, though, my hair is decidedly short.  Every once in a while I try the big earrings again, and I just don’t feel like they’re right.  So now, I tend to favor chunky studs– Kate Spade makes several different pair that I love and are actually pretty reasonable. Plus, now that they’re so popular, there are a lot of knock offs around! I think I’ve got two or three pair of Kate Spade studs and a couple from covet, a favorite local boutique. I want them to be big enough to be seen, but not big enough to fall past my earlobes. I’ve got enough basics to keep me happy, but now I’m on the lookout for something new.

Sleeping Like a Baby

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That’s sort of the point I am at now.  And I guess I’m thankful for that, it’s better than just after I was diagnosed with cancer, when I would fall asleep fine from sheer exhaustion, but then wake around 1:30 am, unable to fall back asleep.  (I became rather familiar with the television schedule, I watched Closer reruns at 3am, and Vegas at 4.  I don’t ever remember that even being on in primetime…)  Now, I struggle to fall asleep, and feel like I’m waking up all the time.  Despite the four pillows that I’m now up to, I just can’t get comfortable.  It’s really all because of  the tissue expanders, and once those are out, I anticipate that I’ll sleep like a baby.  One of my babies, who slept through the night almost immediately, not one of those colicky, up-every-hour kind of babies.  If they’re the measure, then I guess I sleep like a baby now.

On Being Flexible | Part One

I'm not that flexible
I’m not *that* flexible

Having just been to the doctor’s office this week, surgery’s back on my mind.  Immediately after the mastectomy, of course some pain and weakness are totally expected. Since I’d spent time with the physical therapist before the surgery, I knew that my range of motion would be limited at first.  I could raise my arms to shoulder level as soon as possible, and by the end of six weeks I should be able to raise my arms straight up over my head.  She cautioned me that I should take things slowly, but that I needed to work to get back a full range of motion.  Being overprotective would actually work against me, she said she’d worked with women who couldn’t raise their arms higher than their shoulders years after their mastectomy.  Determined not to have that problem, I worked on her exercises to have a full range of motion as soon as it was allowed.  At this point, I think my shoulders are as flexible as they ever were.  The pectoral muscles are still an issue.  They’re always a little tight, when the physician’s assistant described it as my body’s “white noise,” I think she got it just right.  There’s always a tightness, but I don’t always notice it.  Then there are times when those muscles are definitely spasm-ing (is that a word?) and while it’s not painful, it’s really uncomfortable.  Those muscle issues should lessen after my final surgery, though they could continue long after I’m “back to normal.”  In chatting with my doctor, I asked if exercise would lessen or exacerbate the muscle tightness.  He assured me that stretching is good, but strength building of those muscles might cause more harm than good.  So no push ups for me!  Can’t say I’m too sad about that!  (Though I do miss the plank and push up heavy neighborhood boot camp…)  Still, I can work on my arm muscles, and he encouraged me to strengthen my back.  Apparently, the way the muscles are pulled causes the shoulders to want to slump forward, so strengthening my back will help naturally pull my shoulders back into place.  Right now, I think I’m focusing on getting my groove back on the trails, but after I get the post-surgery green light, I’ll be adding some weights into my running routine to keep my arms and back strong.