Re-Pre-Op

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Hopefully just one last IV for me for a very long time

I was back at the plastic surgeon’s office today, for my second pre-op appointment.  My surgery isn’t scheduled until after school starts, but he likes to do the pre-op appointments early to be sure I’ve had time to ask any questions and get everything I need.  I came away with two more scripts– heavy duty antibiotics to prevent infection after the surgery and more lovely percocet (which I probably won’t need).  He explained to me that this surgery is much less invasive and all the trauma has already been done, so it should be a pretty easy recovery.  The mastectomy involved cutting, moving, and stretching of muscle, and that hurts.  But this surgery will literally be a swap out, so no new cutting or stretching.  I also got a pamphlet for medical grade compression gear, we’re talking gear so tight it requires multiple sets of hooks and eyes just so you can zip it up.  So if your spanx just aren’t cutting it and you want something even stronger, I can totally hook you up.

The Power of Lipstick

This weekend an article on the transforming power of lipstick popped up on twitter, and of course, I had to read it immediately! The author was in a rush out the door, but stopped to quickly apply some lipstick and was amazed at how much better she felt about how she looked.  She polled some of her blogger friends, including my friend Maria Jose, the Very Busy Mama, on their favorite transforming lipstick. It’s been pretty important to how I feel about how I look, so I wanted to add my own homage to the transforming power of lipstick.

As I read, I had a hard time thinking of a single favorite lipstick.  I re-read the post, and the word transforming sort of jumped off the page, and then I knew.  Of course, my mainstay through chemo, the lipstick that went on after I tied a scarf around my bald head to announce to the world that I was the healthiest cancer patient they’d ever seen: Dubonnet by MAC.  Now that’s a transforming lipstick.

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Photography by Sally Brewer Photography

Lipstick: Dubbonet by MAC

Summer fun trumps surgery

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It’s summer time, and that means swim lessons, VBS, and fun with friends.  Last week, it meant all three, all before noon.  Busy times!  Turner and I managed to squeeze in some fun with my phone while Emma Clare was in swim lessons.  We thought I should show off my new hairstyle, flipped up in the front.  Big news, huh?

If it weren’t for all the summer fun (and heat and humidity), I could be going in for surgery this week.  It’s been six weeks since I last saw the plastic surgeon, and so my skin has healed enough for me to have my final surgery.  I’m definitely ready– this phase of the reconstruction, while not painful, is certainly uncomfortable.  Plus, I’m so eager just to be finished.  I’ll still have another minor procedure or two after that, but for the most part, that surgery signals the beginning of the end of all of this.  Unfortunately, that surgery also signifies the beginning of four weeks in compression gear, not so friendly for a hot, sticky DC August.  Or trips to the pool with my two new swimmers.

And so I’ll wait until school starts before I head back to the familiar turf of the outpatient surgery center at Virginia Hospital Center.  But I’m not waiting long, because I’m ready.  Ready to be finished with all this.

Lipstick: Fuchsia Flash by Smashbox

The indignity of it all

Yes, they're fake My real ones tried to kill me Tee ShirtsSource

After giving birth to Emma Clare, I decided that the process of pregnancy and childbirth pretty much strips a woman of her dignity.  The sheer volume of people who need to check on something (usually involving stirrups) is crazy.  Then having a small child who knows no boundaries– who feels like a closed bathroom door is an open invitation– surely that would strip away what dignity is left.  Nope, enter the second pregnancy which required taking said toddler to the aforementioned visits involving stirrups.  Gone yet?  Nope, there’s more.  A few more doctor visits and procedures related to the way those kiddos ravaged my body chipped away just a little more dignity.

But breast cancer?  Surely there can be nothing left.  I can’t even begin to count the number of people I’ve had to flash in the course of all my appointments.  Let’s see– there’s a breast surgeon and her nurse– wait two breast surgeons, the oncologist, the nurse practitioner, the two plastic surgeons I saw and their physicians’ assistants, the three or four people involved in the mammograms, the radiologist who did the ultrasound and his nurse, the doctor and nurse in the second biopsy, the two different MRI techs, and I can’t even begin to imagine how many people involved with the surgery and post-surgery care.  And for everyone post-surgery– the nurses, the plastic surgeon, the physical therapist– they all saw my scars.  So did the woman at Nordstrom, Akeelah (love her!), who helped me try on a post-surgical bra while my drains were still in place.  (Kudos to her– she was so gentle and didn’t bat an eye.)  They’ve all been kind, and I can tell that helping me preserve my dignity has been important to them, but there’s only so much they can do about it.  There’s no chance to get all self-conscious.  It’s all survival mode.  Strip down like there’s nothing strange about it and take care of business. Don’t get me wrong, I’m not complaining.  There’s something freeing to be above being embarrassed.  Seriously, if you have a question to ask, I guarantee you’re more embarrassed about it than I am.

Thankfully, a lot of my friends in the survivor community feel pretty much like I do.  We realize that the whole experience stripped away our dignity, but for the most part, we don’t care, and we are thankful that it stripped away our embarrassment, too.  I’m so thankful for those women who will answer all my crazy questions about what I can expect, whether what I’m feeling is normal.  But I’ve met some women who didn’t want their dignity taken, and held on with everything they could.  And I think that’s ok, too.  There are some parts to breast cancer that are mandatory if you hope to survive.  The chemo, the surgery, the radiation– if your doctor says you have to, then you have to.  But how everyone deals with it is different, and some women just don’t want to answer all those questions.  (So ask me, not them!)

My family went through a lot during this whole process, too, but they didn’t have to give up their privacy, their dignity.  You can’t embarrass me, but there are some things that I probably won’t go into detail about here– where it can live online for all posterity–  mostly for their sake.  Already, less than a year from diagnosis, I’ve talked to several newly diagnosed women, sharing my experiences, giving recommendations for doctors, bras, and of course, passing along a lipgloss or two. I’ve found it reassuring to be able to talk to women who are a little ahead of me in this journey, and I consider it a privilege to offer the same reassurance to others.  There’s nothing I won’t share with one of those women, really any woman.  (Guys, well there’s a line.  You know where it is as much as I do, so let’s just not cross it, ok?)  But for the record, and for all posterity, yes, they’re fake.  My real ones tried to kill me.

Post-surgery Essentials

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There were a lot of things that I knew I needed to do leading up to my surgery, and I did a pretty good job of getting them taken care of. I came up with a pretty good list of things I thought I’d need at the hospital, and it turned out to be almost perfect. With two glaring omissions.

First of all, percocet is lovely. It really does a good job at knocking out the pain. (And the rest of me, in the process.) But it makes me so itchy. Like all over, can’t make it stop, but only mildly irritating itchy. Not so bad that I wanted to ditch the good drugs, but after a mastectomy, arm motion is pretty limited, so an itchy back is a nightmare. Try though he might, Clay was just too afraid he’d hurt me to scratch hard enough to make the itch go away. I must have mentioned it at some point, so a few days after surgery, a good neighborhood friend showed up at my house with the best gift ever.

back scratcherGlamorous, right? But the simple bamboo back scratcher she picked up at the local hardware store (they have everything!) was exactly what I needed. I wished I’d had it a few days earlier, but it still got loads of use.

The other thing I’d missed I didn’t pick up until a week or so ago. I knew it would probably help, but kept putting it off. After a mastectomy, the last thing you want is a seat belt pressing against your chest. Even though the initial pain is long gone, there’s still a general irritation from the tissue expanders and I hate the way the seat belt feels. Enter: the seat belt cover.

seatbelt coverSeriously, why did I wait so long to get this? I finally picked one up at the automotive store, but for only around six bucks on amazon, it’s ridiculous that I didn’t buy it earlier. It’s not the perfect solution, but for the most part, it lets me drive around with my seat belt where it’s supposed to be instead of me holding it out with my “non-driving” hand.

So while it may be the strangest assortment of gifts ever, I’m thinking that the next friend I know who has a mastectomy will be getting a back scratcher, a seat belt cover, and maybe a can of pringles. Oh, and some lip gloss. Always lip gloss.

Who needs armpits?

 

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When we told the kids that I had cancer, they were of course worried that I would die.  Being scientists, we opted not to tell the kids I had cancer because of some “icky yucky germs” like one children’s book we’d been given suggested. (Seriously?) Instead, I explained to them that cancer cells grow out of control, they don’t stop when they’re supposed to like normal cells.  I told them that people can die from cancer, when the cancer cells are in a part of your body that you need to live and the cancer takes over so that part can’t do its job. They didn’t need to worry, though, I didn’t need my breasts to survive, the doctors could do surgery and take the breast tissue out and I’d be fine, no cancer, and it wouldn’t change the way my body worked.

Last night I was wearing a tank top.  When I stretched, the kids noticed the scar that’s in my armpit from where they sampled my lymph nodes.  They asked about it, and I told them that’s where the doctors checked to make sure that there wasn’t any cancer, and reassured them that there wasn’t.

Turner’s response: “Oh, because you don’t need your armpit.”

I guess he thinks the doctors removed my armpit.

Finally a Haircut

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I was so excited last week to head back to Georgetown for my first haircut since the “big cut” last fall. Since I didn’t take along my photographer, the picture’s not so hot. I wasn’t sure I wanted to pay so much for cutting such a little bit of hair, but it was so worth it. Dragan did a great job and I really love how it turned out.

More medical forms

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I had a regular, non-cancer doctor visit today. I couldn’t help but giggle when I saw the first line on this section. And I couldn’t resist drawing a smiley face. Yes, there have been some changes…

To scarf or not to scarf?

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So many decisions…  Wig?  Hat?  Scarf?  On my very first visit to the oncologist, I sat in the lab to have blood drawn with another young woman.  She was so stylish—skinny jeans, tall boots, and a long scarf tied around her bald head.  Somehow, at that moment, I knew that I’d spend most of my time in a scarf.  Just about two weeks before, I’d headed to Zoe Boutique to hang out for Fashion’s Night Out in Alexandria.  I love a good swag bag, and that night was no exception—the pebbled Velvet scarf on the far left was part of Zoe’s swag for the night.  It turned out to be the perfect “neutral” and I wore it more than any other scarf, with just about everything.  It’s a jersey (t-shirt) knit, and so comfy, and I liked having the long “tail” hanging behind me.  Maybe I was missing my pony tail. Second from the left was my second favorite—a silk scarf that I picked up at Amalgamated Classics Clothing and Dry Goods—a fun little vintage shop in Del Ray, I wore it with a few of my favorite bulky brown sweaters—it was a square scarf and tied more like a kerchief without the long tail.  The rest actually got more wear around my neck, when I was looking to hide the straps and bulkiness of the post-surgical compression gear.  I looked for more scarves, but came up with few options, in the fall, most of the scarves were too bulky.  Now that it’s spring, I feel like I see scarves I’d like to wear on my head all the time! (I have to fight the urge to hoard them!) I’ve also noticed that there is quite a good selection of scarves at consignment and thrift shops, which is great not only because they’re not as spendy, but it’s easier to pick up a pretty unique selection at a place like that.  Wish I’d been looking there last fall!

Just Me

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Before we headed out on our photo shoot a couple of weeks ago, I was looking around on pinterest for some things to put on my Run Lipstick Chemo pinboard.  I stumbled across some photos of a woman photographed just after she finished chemo.  She was wearing a plain grey t-shirt and looked so casual and contemplative in the pictures.  They were lovely.  So instead of showing up for pictures in one of the lovely silk blouses I’d chosen originally (which of course, we did photograph eventually), I showed up in a plain grey tank top and my favorite yoga pants.  I’d have never thought of being photographed in something so plain, but it turns out, I really loved the way all these pictures turned out.  It was so hard to only show a few.

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The other thing that surprised me about these photos—I’m not at all self-conscious of how I look, despite the fact that I was not even all the way through the first stage of reconstruction.  It’s a long process, but I have to say that my surgeon is not only very compassionate, but wants to make sure that I’m pleased with how I look every step of the way.  He made it very clear from our first meeting that he didn’t want me to feel like this was how I had to look because I had breast cancer, or even that I looked “good enough” for having had cancer.  He wanted me to be happy with how I looked.  Period.

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In those pictures I saw on pinterest, the woman still had her port in.  Why didn’t I have any pictures of my port?  I can’t believe it!  I told Sally that I didn’t want her to photoshop out my port scar, even still, you really can hardly see it in most of the pictures.  Thankfully, it’s pretty prominent in one of my favorite shots.  I like that I don’t have on fancy clothes or statement jewelry.  These pictures are just me, scars and all.  And that’s not good enough.  It’s just good.

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Photography by Sally Brewer Photography

Lipstick: Dior Addict Lip Glow

Bracelet: Choose Joy by lilblueboo