Calm Before the Storm

I tend to think of the last week before a holiday as the calm before the storm. But not so much this year. With a week wiped out by bronchitis and sinus infection, any plans for “getting ahead” vanished quickly. Moments of calm, where I think I might be caught up, are interjected with moments of panic at all there is to do! Thankfully, we’re mostly finished with the school projects, and I think I only have two or three more gifts to pick out, then pick up. (It’s the picking out that’s really getting me!)

We’re looking forward to hosting Christmas at our house this year– kind of necessary as I have my “half way” appointment with my surgeon the day after Christmas and a chemo treatment the day after that. But we have been so blessed that the cousin of a dear friend has offered to share her home with my family while she is out of town! I remain overwhelmed by her generosity. And so we will be able to spend the holiday with my parents, my brother, his wife and their new baby without having to be on top of each other in our little house!  (Plus the new baby is a bit colicky—so I’m super glad she’s sleeping a mile or so away!)

While I look at this week as a bit of a storm of activity before what will hopefully be a calm holiday week, I hope to enjoy every bit of it. A few more things on the to-do list, a few fun activities, too… I may still have that lingering cough (keep those prayers coming!) but I’m not going to let that slow me down.

Chemo #4

 

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Today I headed to chemo with yet another friend.  I’m a chatter, so taking along a friend is fun.  There are a couple of private rooms at the infusion center, and we try to snag those when we can.  I always worry that we’ll have too much fun and all our chatting and laughing will bug people who are sicker.  Or grumpier.  Yesterday I ran into the social worker who runs several support groups at the cancer center.  She noticed that three young women with breast cancer would all having chemo at about the same time today, and so she had asked that we all be put in the same common room.  Michelle was one treatment ahead of me on the same chemo schedule, and the French girl (yes, she’s French, and no, I don’t remember her name!) was on her first treatment.  The French girl and I were able to hear all about what to expect from surgery from Michelle, who’d opted to do that first.  And Michelle and I were able to let the French girl know what was coming from chemo.  She was glad to hear how well we were handling chemo, and it clearly relieved her aunt, who had come with her.  Both of the other girls there were a little younger than me and were unmarried without any kids.  A big decision young women face before starting chemo is whether to save their eggs.  Chemo throws you into menopause and probably wrecks your eggs even if you bounce out of menopause post treatment, so saving eggs is necessary if you want to have biological children.  Both of these women had opted to forgo egg harvesting knowing that it would involve a lot of hormone injections and a painful surgery and would delay cancer treatment.  It was so wonderful that the friend I took along had been through IVF treatments and so knew all about what they would have faced with the egg harvesting. She was able to tell them about her experiences and the adoption of her son, encouraging them that they had made a good decision.  So while I know I’ll probably check the availability of the private room again, I’ll make sure that I pop out to check on my new friends, too.

Time Flies

Tomorrow is chemo day #4. As in #4 of eight. So that will put me at the halfway mark of treatments. I can’t believe how quickly they’re going by. Being sick last week, I was a little worried that I might have to put off chemo this week. Luckily, my blood counts were all good enough to qualify me for chemo, so there’s no delay. This will be the last of my AC treatments, and I’ll start a new drug after Christmas. Apparently, the side effects of the new drug aren’t as “bad” as with AC, so it’s usually easier for people to tolerate. Since I’ve done so well with AC, I’m hoping that I’ll find the next one equally easy to tolerate.

I do still have a lingering cough that I’d love to get rid of, but I usually hang on to a cough for a while after I’ve been sick, so it’s really not all that unusual. That said, I don’t usually hang around that many people with compromised immune systems, and I really hate to cough around them, even if I’m not contagious. So if you could all pray this cough away, I’d be thrilled!

Closer to Normal

Ah, the magic of sleep. Yesterday, in addition to my normal 2-ish hour afternoon nap, I took almost a three hour morning nap. To all those who immediately wonder if I was then up all night– no, I had the best night of sleep in over a week! All that sleep, I’m sure coupled with the antibiotics, has left me a new person! I’m still eager for today’s long afternoon nap, but am feeling so much closer to normal. Turner was obviously back to school yesterday, letting me have plenty of time to nap, so I think things are about to get under control here. Which is good, considering all the holiday activities, projects (WHY do teachers think this a great time of year for big projects???), and shopping still on my list. And of course, there’s still that laundry…

Germs Don’t Stop for Cancer, Either

More back to normal mom stuff this week. We’ve had a cough going through the house for ages, and I’ve managed to avoid it until last week. By Tuesday, Turner’s cough had become full on bronchitis, thankfully Clay was able to take him to the pediatrician’s office so I could avoid picking up any new germs there. As it turns out, though, the germs I already had were plenty, and now I have my very own Z-pack, too.

I’m hoping the antibiotics will get this under control quickly and that Turner will stay well enough to go back to school so that I can nap. On top of everything else, this has left me pretty worn out and I could use the sleep. Any extra prayers this week for speedy healing and continued health for my family would be much appreciated!

Not Your Normal Christmas Card Photo

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We have some really lovely family photos that Sally took of us a month or so ago.  Obviously, I want to use one of those for our family Christmas card.  But when we found out that I had breast cancer, Clay and I decided together that we were going to own this.  I don’t intend to let cancer take over my life, my every conversation.  But I’m also not going to pretend that it doesn’t exist.  I can be strong and beautiful and have cancer.  It seemed almost a little fake to send everyone a card in December, knowing that all the lovely hair in that picture is now gone.  So I had Sally bring her camera along to lunch after church today, and she snapped this one quickly.  I’m not really one for the long Christmas letter, but I know that there are some people who don’t hear from us much the rest of the year.  So this picture will go on the back of our card along with the address of my Helping Hands site.  Anyone who doesn’t already know can check it out if they’re interested.  But even if they don’t follow along with my posts there, I think this picture really is worth a thousand words.  I may have cancer, but cancer doesn’t have me.

Laundry Doesn’t Stop For Cancer

I met a new friend a couple of weeks ago, a friend of a friend, who has just finished her battery of treatments for breast cancer. I enjoyed talking with her, she gave me some tips and even a few hats! She’s a writer and commented that if she were to write a book about her experience, it would be entitled Laundry Doesn’t Stop for Cancer. Not that I’ve been doing nothing but laundry for the last week, but it’s been a “normal” week. And being a mom doesn’t stop just because I have cancer. So I’ve been keeping busy with normal mom things, and am thrilled that I’ve been able.

I’m still holding my afternoons sacred for naps, but have managed to last this long and still have no nausea, so we’ve been able to reduce my steroids (which help control nausea) in the hopes that I’ll sleep better– they make me pretty wired!
With the holidays coming, there are plenty of “normal events” to keep me busy: concerts, parties, dinners. As long as I can, I’ll keep napping my afternoons away so that I can keep up with my family during this busy time of year. And so I can keep up with all this laundry.

Chemo #3: Cryotherapy by Slurpee

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My third trip to chemo took me back to one of the common rooms.  There are three, and it’s pretty easy to tell which is the sad, quiet room.  Obviously I don’t choose that one!  There was another woman in this room who I’d met the first day, and so it was fun chatting with her again. In this photo, you can see my slurpee.  During my first trip to chemo, my nurse told me that I should suck on ice or keep something cold during part of my infusion.  Adriamycin is a particularly nasty drug, instead of letting it drip in over time, she would “push” it directly into the line into my port.  It takes about ten minutes for her to slowly inject it into my line.  Studies have shown that cryotherapy—bathing the mouth in ice—will help prevent mouth sores that are a common side effect from chemo.  So after I put on some lipstick (Dubonnet again!), we head to 7-11 to pick up a big slurpee.  I stash it in a little cooler so that it’s cold and icy when we get to the Adriamycin push.  I love a good slurpee, but by the time she’s finished, I’m usually freezing and sick of my beloved coke slurpee.

So Very Thankful

I am thankful for so much this year. It would be easy to complain about the interruption in my life– the time and energy that I’m losing to cancer. But it’s just an interruption, and complaining would only use up more time and energy.

Strangely, I’m oh so thankful for a cyst. Over and over again, doctors have told me how shocked they are that I presented with a cyst and was diagnosed with cancer. But the wonderful thing about the cyst is that it got big quickly and got me to a surgeon right away– nearly five years before I would have had a normal mammogram. The crazy formation of the cyst allowed me to be diagnosed while the cancer is still very treatable. I’m thankful for a surgeon who wanted to aspirate that cyst even though many doctors wouldn’t have encouraged me to do so. I’m thankful for a team of doctors who have coordinated all kinds of appointments and tests for me, just telling me when and where to show up, and for the fact that they have personally ensured that everything is scheduled in a timely manner.

I’m thankful that both kids are in school now and I’m able to stay at home, managing all the appointments and chemo is so much easier when I can schedule everything and rest while they’re at school so that I can be “on” when they are home. And I’m so grateful for a super huge bus stop– it’s a whole community where the kids play for an hour after school most days, even on holidays and weekends. I always know that someone (usually several someones!) will look out for my kids if I can’t make it. I’ve made some great friends there and it’s so wonderful to live in a community where you run into friends all the time.

I’m thankful for an army of friends, relatives, and friends of friends who pray for me, encourage me, and take care of me and my family. Even though I’ve felt relatively well so far, I lose a lot of hours each day to napping and appointments, so not having to worry about cooking dinner every night is such a weight off my mind. I’m collecting a whole big box of the kindest cards and notes, I wish I could thank everyone personally, but there are far too many. It’s so touching how many think of me and take the time to write me.

Of course, I’m thankful for my dear friend Sally. She’s blessed my family with the most special photos of us all together, and I know so many appreciate the photos she’s taking of me to share along the way. She’s made time to come along with me to appointments, chemo, wig shopping, and when I had my head shaved. She’s got her own family to take care of, yet she makes sure that I don’t walk a step alone. We have a lot of fun, honestly, but every once in a while shake our heads that this is how we now fill our mornings out. And yet, I’m sure it never crosses her mind not to tag along. My parents and brother check on me all the time and I know think of me even more. I’m sure hardest of all, they’re letting me have some independence to try to keep things normal for my family. I couldn’t be more thankful for two kids than I am for Emma Clare and Turner. They play together so well– I’m sure they argue and occasionally there are tears, but for the most part, if we’re home, they find something to do together and I have to ask them to come hang out with me! They’re great at letting me nap, they’ll watch TV or play together quietly enough for me to sleep for a couple of hours, even if Clay is at work. They love me so much, and have dealt with everything from missed field trips to my bald head with such graciousness. And I’m so thankful for Clay. He takes care of me when I need it, lets me be normal when I can, and tells me I’m beautiful (and means it!) even now that I have no hair.
God continues to make my body strong. Every day I am thankful for the strength I have. I am overwhelmed with gratitude, knowing that even in a difficult situation, I couldn’t ask for more.

Not bad, eh?

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And here is the “after,” the wig after a little breaking in and with no extra hair underneath. It really looks so much like my real hair.  But, it feels like a step or two above American Girl doll hair.  I’m a fiddler—I’ve always played with my hair, tucking it behind my ears, pulling it up off my neck…  This is going to take some getting used to; long, curly, synthetic hair is not for a fiddler.  I’ll never be able to run my fingers through this “hair,” so I need to learn to leave it alone.  I’m ok with the scarf look, though, and I’m so glad the kids are, too.  Putting on all this hair feels a little like playing dress up to me—it feels too fake.  And somehow it makes me feel stronger to go out sans hair.  So I’m betting this lovely wig may not get a lot of wear…  And that’s ok.