So many decisions… Wig? Hat? Scarf? On my very first visit to the oncologist, I sat in the lab to have blood drawn with another young woman. She was so stylish—skinny jeans, tall boots, and a long scarf tied around her bald head. Somehow, at that moment, I knew that I’d spend most of my time in a scarf. Just about two weeks before, I’d headed to Zoe Boutique to hang out for Fashion’s Night Out in Alexandria. I love a good swag bag, and that night was no exception—the pebbled Velvet scarf on the far left was part of Zoe’s swag for the night. It turned out to be the perfect “neutral” and I wore it more than any other scarf, with just about everything. It’s a jersey (t-shirt) knit, and so comfy, and I liked having the long “tail” hanging behind me. Maybe I was missing my pony tail. Second from the left was my second favorite—a silk scarf that I picked up at Amalgamated Classics Clothing and Dry Goods—a fun little vintage shop in Del Ray, I wore it with a few of my favorite bulky brown sweaters—it was a square scarf and tied more like a kerchief without the long tail. The rest actually got more wear around my neck, when I was looking to hide the straps and bulkiness of the post-surgical compression gear. I looked for more scarves, but came up with few options, in the fall, most of the scarves were too bulky. Now that it’s spring, I feel like I see scarves I’d like to wear on my head all the time! (I have to fight the urge to hoard them!) I’ve also noticed that there is quite a good selection of scarves at consignment and thrift shops, which is great not only because they’re not as spendy, but it’s easier to pick up a pretty unique selection at a place like that. Wish I’d been looking there last fall!
Category: survivor
Just Me
Before we headed out on our photo shoot a couple of weeks ago, I was looking around on pinterest for some things to put on my Run Lipstick Chemo pinboard. I stumbled across some photos of a woman photographed just after she finished chemo. She was wearing a plain grey t-shirt and looked so casual and contemplative in the pictures. They were lovely. So instead of showing up for pictures in one of the lovely silk blouses I’d chosen originally (which of course, we did photograph eventually), I showed up in a plain grey tank top and my favorite yoga pants. I’d have never thought of being photographed in something so plain, but it turns out, I really loved the way all these pictures turned out. It was so hard to only show a few.
The other thing that surprised me about these photos—I’m not at all self-conscious of how I look, despite the fact that I was not even all the way through the first stage of reconstruction. It’s a long process, but I have to say that my surgeon is not only very compassionate, but wants to make sure that I’m pleased with how I look every step of the way. He made it very clear from our first meeting that he didn’t want me to feel like this was how I had to look because I had breast cancer, or even that I looked “good enough” for having had cancer. He wanted me to be happy with how I looked. Period.
In those pictures I saw on pinterest, the woman still had her port in. Why didn’t I have any pictures of my port? I can’t believe it! I told Sally that I didn’t want her to photoshop out my port scar, even still, you really can hardly see it in most of the pictures. Thankfully, it’s pretty prominent in one of my favorite shots. I like that I don’t have on fancy clothes or statement jewelry. These pictures are just me, scars and all. And that’s not good enough. It’s just good.
Photography by Sally Brewer Photography
Lipstick: Dior Addict Lip Glow
Bracelet: Choose Joy by lilblueboo
Kids | From the Pen of a Third Grader
I mentioned that I’m a little squeamish about using the term “survivor” and have a bit of a knee-jerk reaction to seeing the pink ribbon plastered all over. Turns out my precious third grader has adopted the symbol as her own, and even she identifies with the term “breast cancer survivor.” From the day I told her, I’ve found pink ribbons drawn all over the place, and I’ve had to work hard to convince her she doesn’t need a leotard emblazoned with pink crystals in the shape of a ribbon. I think I only won that one because she can’t buy it on her own! But seeing these notes she left me on my sewing machine (where she leaves most of my notes) is making me think about the term survivor again. While I nearly wince to have to call myself a survivor, maybe it’s important for her that I do. Maybe I’ll reconsider…
Missing Cancer | Naps
While I was on chemo, and for quite a while after, I took a nap just about every single day. I’d skip a day here or there, but for the most part, I napped for two or three hours every afternoon. Sometimes that put a bit of a damper on my fun, I once turned down a lunch invitation to District Taco just to be sure I had time for my nap! I usually had company when I was at the hospital, but occasionally I’d sneak in a nap there, too. My best hospital nap was probably just after this picture was taken, I was in this super teensy room while I waited to get appropriately radioactive for my PET scan. The recliner I was in touched one wall when it was reclined, and my feet were touching the other wall. I can see some people finding it claustrophobic, but it was huge compared to the tube they stuck me in moments later!
I’m missing my naps now, though. There’s something so luxurious about using a nap as a perfectly acceptable excuse to do nothing. Now I’m back to weekends-only naps, and last weekend was too busy, so it’s been a LONG time since I’ve had a nap. Those were the good old days!
This post is part of a series of what I’ll miss from my time as a cancer patient. I know cancer is a serious thing, not everyone tolerates treatment well, and not everyone recovers. I don’t mean to offend by making light of a serious subject. These posts are just a glimpse of my efforts to make the best of my situation—to find the silver linings wherever I can.
Love me, love my friends
All during my cancer treatments, I was so fortunate. I didn’t have an unmet need. Friends would literally fight over the opportunity to bring us meals. Sally would post meal delivery dates, and usually within minutes, all the slots would be filled. Friends watched my kids so that I could go to appointments or even just take a nap. Cupcakes showed up at my door. So did hats, jewelry, magazines, books… We were so well taken care of at my house, I couldn’t have asked for more.
Sadly, I didn’t realize until a little late in the process that there was something more I should have asked for. I should have asked for help for those who were doing so much to help me. Clay is the obvious caregiver, but he was pretty well taken care of, too. (I sometimes wonder if he misses all the yummy meals and treats people would bring us, now that it’s back to me doing all the cooking!) But there were others who cared for me who weren’t as obvious. Luckily, Sally’s husband was able to arrange his schedule so she only had to get a sitter a couple of times to come along to chemo. But frequently she would spend the day with me, and as I returned to find dinner ready and waiting for me, she would drive the 45 minutes home and stop at the store to get what she needed to make dinner for her family. My mom, many hours away, didn’t spend her whole day caring for me only to have to cook dinner. Instead, she would spend my chemo days worrying—despite all my best efforts to convince her that it wasn’t so bad. Please don’t think I’m complaining. (In fact, I think Sally would probably kill me if she thought I was soliciting meals for her!) Lots of people thought of my friends and family! A neighborhood friend watched Sally’s little one while I was in the hospital so she could stop by to visit. Several friends showed up at the hospital to bring Clay lunch, snacks, and magazines to fill the day when I was in surgery. A friend’s cousin (who I’ve only met a couple of times!) offered her home for my family to use when they visited us over Christmas. A good friend of my mom met her for a special lunch while Sally and I celebrated at my last chemo treatment!
I’m definitely more in tune now to see the needs of a fellow cancer patient. I know the things that people did for me that really touched me, perhaps I’ll share some of those some day. But I think one thing that I really learned is that it’s the best friend, the mom, the sister who is the unsung hero. She needs support, too. The challenge I give myself is the same one I hope you’ll take on as your own. Of course, if I have a friend going through something like this, I’ll make her dinner, take her kids, go with her to as many appointments as often as she needs. But I’ll also offer to watch her best friend’s kids. And the next time I see a friend whose good friend is going through a tough time, I’ll do what I can to make it easy for her to be there for her friend. Sally would never have asked, but a meal or a sitter would have made her life easier. My mom didn’t need a sitter, but loved the distraction of a lunch date or shopping adventure on my chemo days. It gives a whole new meaning to the phrase, “Love me, love my friends.”
Flashback Friday
This is how I looked, and more notably, how Emma Clare looked, the last time I went into The Research Building at Georgetown University. September 2004. This photo was taken before we left the house the morning of my dissertation defense. (And before I had a professional photographer following me around all the time!) After this day, I went back at most two or three times that month to go over some minor revisions before I deposited the final copy of my dissertation. Almost nine years later, last Friday, I walked down the old familiar path past the Lombardi Cancer Center, past the icky Koi pond, and through the doors of The Research Building once again. So much has changed since that day, and yet, as I peeked into the room where I spent countless hours in the hood doing cell culture, so much has remained unchanged.
Friday, I wound my way through those familiar halls for my first meeting with the Georgetown Lombardi Breast Cancer Patient Advocacy Committee. I wish I could come up with an easier nickname than GLBCPAC—it doesn’t really just flow off the tongue—but there you have it. Led by a researcher who started her postdoctoral fellowship the same year I left Georgetown, it’s a group of women who proudly call themselves breast cancer survivors (I’m still working on that one!) and volunteer their time to learn more about scientific research in the field of breast cancer. From what I can gather, though none are scientists, many have gone through scientific and policy training to make them effective advocates for breast cancer research. Some of them now work professionally in an advocacy position, some are retired and their volunteer work is now their only job, and some have maintained their original profession and are advocates in their “spare time.” They have served on grant review panels, attended major cancer association annual meetings, and visited congressmen to lobby on behalf of breast cancer researchers and funding. It was a pleasure getting to know them, and they were all so kind as they welcomed me. As we talked about what I hoped to learn from the group, several suggested friends and colleagues they felt I would benefit from meeting. Bright and early Tuesday morning, I’m going to get started following up on some emails and making a phone call or two to start building that network. This group focuses more on research advocacy, though many are also involved in patient support as well, and they are a great resource in so many areas of breast cancer patient advocacy. I’m so excited that I’ll have the opportunity to meet with them monthly over the summer while I’m trying to figure out if and how I’d like to look for a professional position in this field, and I foresee my relationship with these ladies will continue long into the future.
After the meeting was over, I walked down the hall a few doors and stopped into my old lab. I said “hi” to a few familiar faces and sat down and talked for a while with the friend whose bench faced mine all those years ago. The baby she had just before Emma Clare was born is now just a few inches shorter than she! We talked about old friends, kids, travel, cancer. Then I headed over to my mentor’s office and had a lovely chat with her. I was a little apprehensive—some relationships are hard to pick up after so long. But we had such a nice conversation, we spent a little time talking science, the role of patient advocates in the grant review process, and how that process has changed in the past ten years or so. It was an energizing morning. Having never really loved the bench work, when I left the lab nine years ago with that tiny baby on my hip, I never really anticipated I’d be back. And yet, there I was. What a wild ride.
On Being a Survivor

Having made it through chemo and surgery and having been told by the doctors that there is no residual disease, I have entered the third stage of my interaction with breast cancer. Researcher. Patient. Now survivor. That’s a hard word for me. There are some benefits to using it—everyone knows what it means: I had breast cancer and I didn’t die. It means that at big breast cancer races I get the pink shirt and the cool swag bag. It gains me access into a whole new community. A community, it turns out, filled with vibrant, beautiful, compassionate women of all ages.
But I worry about using the term survivor. In fact, I’ll probably use it when absolutely necessary (I love me some swag bags!) but I’m not sure I’ll refer to myself as a breast cancer survivor much. I survived, but not because I’m stronger or made wiser decisions or am more favored by God. I worry that to call myself a survivor somehow implies that those women who have gone before me, the ones who have succumbed to breast cancer, were weaker. In fact, those ladies likely possessed more strength than I could ever imagine.
To survive something means that you’ve gotten through something hard, and I suppose that fits. Many survivors—survivors of war, natural disasters, acts of terror– feel guilt about having survived. Even long before the doctors pronounced me cancer free, I felt this guilt. Throughout all of my chemo treatments, I was not nauseated. Not a single time. I had no sores in my mouth, my fingernails were in good shape, my fatigue never reached the level of debilitating (though I’m sure the napping helped). Frankly, for the most part, I felt great. And at the same time, I felt horribly. Horribly for the women who were nauseated, completely worn down, couldn’t eat. I wanted to have a great attitude all the time, but sometimes I felt bad just for being able to have such a great attitude. Never was that guilt more acute than when I sat, wig-clad, at my good friend’s funeral. It’s not fair that she has to be labeled “breast cancer victim” while I get to wear the badge “survivor.” She was a strong, healthy, Godly woman. I’m not better than her. I just have a different story.
You won’t see a big pink ribbon magnet on the back of my car or anywhere on this site. (Though my daughter does love them, bless her heart.) At least not now. It has nothing to do with wanting to hide the fact that I’ve had breast cancer. You won’t hurt my feelings by calling me a survivor, but that’s just not how I want to think of myself. I prefer you think of me as a wife, a mother, a daughter, a friend. Think of me as a researcher, an advocate. We’ve all survived something tough. We’re all survivors.
Not Your Normal Christmas Card Photo
We have some really lovely family photos that Sally took of us a month or so ago. Obviously, I want to use one of those for our family Christmas card. But when we found out that I had breast cancer, Clay and I decided together that we were going to own this. I don’t intend to let cancer take over my life, my every conversation. But I’m also not going to pretend that it doesn’t exist. I can be strong and beautiful and have cancer. It seemed almost a little fake to send everyone a card in December, knowing that all the lovely hair in that picture is now gone. So I had Sally bring her camera along to lunch after church today, and she snapped this one quickly. I’m not really one for the long Christmas letter, but I know that there are some people who don’t hear from us much the rest of the year. So this picture will go on the back of our card along with the address of my Helping Hands site. Anyone who doesn’t already know can check it out if they’re interested. But even if they don’t follow along with my posts there, I think this picture really is worth a thousand words. I may have cancer, but cancer doesn’t have me.
Laundry Doesn’t Stop For Cancer
I met a new friend a couple of weeks ago, a friend of a friend, who has just finished her battery of treatments for breast cancer. I enjoyed talking with her, she gave me some tips and even a few hats! She’s a writer and commented that if she were to write a book about her experience, it would be entitled Laundry Doesn’t Stop for Cancer. Not that I’ve been doing nothing but laundry for the last week, but it’s been a “normal” week. And being a mom doesn’t stop just because I have cancer. So I’ve been keeping busy with normal mom things, and am thrilled that I’ve been able.
I’m still holding my afternoons sacred for naps, but have managed to last this long and still have no nausea, so we’ve been able to reduce my steroids (which help control nausea) in the hopes that I’ll sleep better– they make me pretty wired!
With the holidays coming, there are plenty of “normal events” to keep me busy: concerts, parties, dinners. As long as I can, I’ll keep napping my afternoons away so that I can keep up with my family during this busy time of year. And so I can keep up with all this laundry.
Chemo #3: Cryotherapy by Slurpee
My third trip to chemo took me back to one of the common rooms. There are three, and it’s pretty easy to tell which is the sad, quiet room. Obviously I don’t choose that one! There was another woman in this room who I’d met the first day, and so it was fun chatting with her again. In this photo, you can see my slurpee. During my first trip to chemo, my nurse told me that I should suck on ice or keep something cold during part of my infusion. Adriamycin is a particularly nasty drug, instead of letting it drip in over time, she would “push” it directly into the line into my port. It takes about ten minutes for her to slowly inject it into my line. Studies have shown that cryotherapy—bathing the mouth in ice—will help prevent mouth sores that are a common side effect from chemo. So after I put on some lipstick (Dubonnet again!), we head to 7-11 to pick up a big slurpee. I stash it in a little cooler so that it’s cold and icy when we get to the Adriamycin push. I love a good slurpee, but by the time she’s finished, I’m usually freezing and sick of my beloved coke slurpee.