Haircut day!

hair collage

I know you’re all wondering why I haven’t talked about my hair in over a week.  No?  As it turns out, my hair is currently driving me a little bonkers, so you’re going to have to hear about it yet again.  I have these crazy curls– not quite super tight curls, but definitely more than “texture.”  So if I’m not careful, that is, if I don’t over do the product and re-wet it every hour or two, I end up with a fuzzy, round head.  Not a pretty sight.  I’m used to working on my hair, though, so I decided to try out some of my old long hair tricks last week.  On the left, my attempt at a standard blow out.  Really tough to do with short hair– hard to get the brush to grab onto anything to pull it straight.  The result: straighter and more directional, but still pretty fluffy.  On the right, I tried the flat iron.  Also very tough.  (I may have burned myself a couple of times.)  The result: just about every hair on the top of my head stuck straight up, so that didn’t cut down of the fluffy problem either.  Remarkably, I don’t hate these two photos nearly as much as I hated the hair styles in person.  I can’t figure out what’s up with that.  Regardless, I’m not happy with my hair right now.  I figured there was no way I’d get in to see Dragan before I had to break down and cut my own hair, but I was thrilled when I called this week and he had a cancellation for this afternoon!  Of course, I’ve always left a lot to his discretion, but I’m telling him that I’m not trying to grow it out and I want a short ‘do, hopefully one that can last more than a couple of weeks!  Stay tuned for more on the hair drama.  (To see a picture even sooner, follow me on Facebook and Twitter— I’ll probably put something up there right away!)

Again, thankful

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I’ve written about being thankful before, but once again tonight, I am feeling so very thankful.  I talked tonight to a sweet friend– she has a good friend whose four year old is in the hospital, fighting cancer.  As we chatted, I kept thinking of these beautiful faces.  Of what it would be like to watch them, in the hospital, fighting for their lives.  I am so very thankful that I was the one to have cancer. I’m thankful that I’ve come this through quickly and as strong as ever.  Stronger than ever, really.  But mostly, I’m thankful that these precious children are healthy, happy, goofy, strong.  (Even when Sally asked them to be serious, Turner could hardly hold a straight face!  Emma Clare, ever the model, gave a great blue steel look!)  So tonight I pray.  A prayer of strength for a mother facing her worst nightmare, a prayer of healing for her sweet little one.  And a prayer of thanksgiving for these two healthy goofballs.

Summer fun trumps surgery

photo

It’s summer time, and that means swim lessons, VBS, and fun with friends.  Last week, it meant all three, all before noon.  Busy times!  Turner and I managed to squeeze in some fun with my phone while Emma Clare was in swim lessons.  We thought I should show off my new hairstyle, flipped up in the front.  Big news, huh?

If it weren’t for all the summer fun (and heat and humidity), I could be going in for surgery this week.  It’s been six weeks since I last saw the plastic surgeon, and so my skin has healed enough for me to have my final surgery.  I’m definitely ready– this phase of the reconstruction, while not painful, is certainly uncomfortable.  Plus, I’m so eager just to be finished.  I’ll still have another minor procedure or two after that, but for the most part, that surgery signals the beginning of the end of all of this.  Unfortunately, that surgery also signifies the beginning of four weeks in compression gear, not so friendly for a hot, sticky DC August.  Or trips to the pool with my two new swimmers.

And so I’ll wait until school starts before I head back to the familiar turf of the outpatient surgery center at Virginia Hospital Center.  But I’m not waiting long, because I’m ready.  Ready to be finished with all this.

Lipstick: Fuchsia Flash by Smashbox

There’s no crying in cancer

sweet kiss

Not surprisingly, when I asked my surgeon to repeat herself and heard the words “invasive breast cancer” for the second time, I began to feel tears well up in my eyes. Clay had gone to the bus stop to pick up the kids, so I had a few minutes to myself. And I cried. Some. But I knew they were coming home, and I didn’t want to be a mess when the kids walked in. Since I’d had a minor surgery that morning, I knew they’d be worried about me and would want to give me a hug. I was so glad to have a few minutes to gain my composure. There were a few tears when I told Clay, then we talked about the next steps. Not the next year. Just the next week and the next months of treatment. From that time on, there were very few tears. From me, anyway.

I remember the first time I had a young friend diagnosed with breast cancer. Oh, how I cried. We weren’t really close friends, more acquaintances, frankly. But her daughter was close to Emma Clare’s age, and I was probably a bit over dramatic. I immediately began thinking of all the things I wanted to tell Emma Clare, to teach her, to do with her. And I cried that this friend might not get to do all those things with her daughter. I cried for her, but really I cried for myself.

But by the time I had to start telling people that I had cancer, I’d had time to process the information. I’d had time to cry my tears and find my composure. It’s funny, but no one tells you that once you’re diagnosed with cancer, you’re likely to be hugging a lot of crying people and comforting them. They haven’t had the time to process, and they can’t do a thing about it. They’re stuck with the emotional impact and utter helplessness. Sure, I was affected on an emotional level. I’m not a robot. But I had things to do, appointments to make and show up for, schedules to organize. I didn’t really have time to sit and cry.

Honestly, after that first day, I only really remember crying three times. Once, I was just so tired, I wasn’t sleeping well, and it was more about the fatigue. I cried when we told the kids. There’s something about a five year old’s first reaction being, “So, you’re going to die?” that will bring tears to a momma’s eyes. I had decided to be very honest with them, but that wasn’t a thought I was going to let them entertain, so I quickly answered with, “Oh, no,” before telling them what my treatment would likely entail. Besides the kids, most people were far to afraid to ask anything so honest, and we stuck to logistics for the most part. I had that down cold, no hint of emotion there. But I remember one day really early on, before I’d even talked with the oncologist, Sally had come with me to an appointment and we only had time to grab a quick lunch before she had to head back to her kiddos. We ate at Chick-fil-A, I can remember which table. And I remember her words, half question, half statement. “But it’s treatable.” My friend wanted to know if I would die. And the quick answer I found to reassure my kiddos just wouldn’t come. I fought tears as I cobbled together every positive statement I could think of. We found it early, it seems small, I’m young and healthy… A few tears, a deep breath, and then I moved on with the conversation. Not because there’s anything wrong with crying. But because I just had to.

This is my village

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We’ve all heard that it takes a village to raise a child.  Well, this is my village.  At our bus stop, at least thirty kids get on the bus every morning.  Except on the rainiest days, there’s a crowd there long before necessary– the kids play, the adults chat and drink coffee.  And after school, there’s a group playing for at least an hour every day.  All during the school year, anytime I needed to head to a doctor’s appointment early, I knew I could drop the kids here or with a friend before they headed over.  And if I thought I might be late, a quick heads up in the morning or even last minute text was enough to ensure someone would see that the kids got off the bus safely and had somewhere to go.

I don’t think I ever told the story about how they found out I had cancer.  I found out on a Friday afternoon, and then had appointments Tuesday and Wednesday.  Tuesday I dropped them early with a friend, and then Wednesday, Clay was going with me to the oncologist, so we both walked the kids to the bus stop.  One friend was just ahead of us, still wearing her running gear.  I remember telling Clay that her littlest must have gotten up early, so she’d have to go for her morning run later, with the stroller.  It’s amazing how much you can know about a person and what’s going on in their life when you see them twice every single day– just her outfit told me lots.  Not remarkably, she could tell that something must be up with me, too– I was dressed, made up, in heels and ready to go for the third day in a row and Clay was with me (maybe only the second or third time he’d ever been there in the morning).  She asked if everything was ok, and I must have nodded and mumbled something about a doctor’s appointment and I’d tell her all about it later.  Only that afternoon, I was late to the bus and everybody cleared out early for various after school activities, so I didn’t see her.  We told the kids I had cancer that night, and the next morning, I had a very early appointment with a plastic surgeon, so Clay had to take them to the bus stop again, only this time, solo.

Clay got to the bus stop with the kids, and a big group of moms was chatting, as usual.  Turner ran up to the middle of the group ahead of Clay and announced quite loudly, “My mommy has cancer!”  And then he ran off to play with his friends.  And then, crickets.  Clay said all the talking.  just.  stopped.  It still makes me giggle to think of how that must have looked.  Thankfully, we’d been camping with two bus stop families a couple of weeks before, so at least two moms knew Clay well enough to approach him and talk to him, most of the gaggle of moms only knew me.

And before I’d even had a chance to chat and hear how it all went from Clay (honestly, I laughed– such a funny scene in my mind!), I had texts from at least two friends.  Simple words, but thoughtful and so kind.  In your thirties and early forties, I think it’s kind of hard to know how to react to something like a friend with a potentially terminal disease.  But my village, they did it perfectly.  Lots of hugs and promises of support.  They offered help, but were so gracious not to smother me.  These families fought over the opportunity to meet any need I even mentioned, and they bragged when they managed to secure a spot to bring us dinner!  They watched my kids, they cooked us meals, they learned more about cancer and reconstructive surgery than any woman our age should ever have to know.  They celebrated with me.

Now that it’s summer, we don’t have that daily connection.  I miss my village.  But even with no bus to catch, we’ll still be spending some time at the bus stop.  It was never really about the bus, anyway.

 

Hair’s the thing…

pixie cuts
via pinterest

So I’ve been thinking a lot about my hair lately.  I think a lot of people have.  You all ask about it– will I let it grow out? Maybe not, not right now, anyway.  According to a post Ashley did, it will take about 4.9 years for my hair to grow out to its former glory.  (I love that she figured that out!) Somehow, I’m not sure a woman over 40 needs hair that long.  Or at least, not this woman.  But mainly, I like it this way.  And not because it’s easy.  Honestly, yes, it is easier than blowing out all that hair before either straightening it or curling it.  Somehow, I’m betting not many people honestly think that I make fashion choices because they’re easy.  If we’ve talked about my hair and you’ve been one of the very many who’ve commented, “Well, at least it’s easy,” that’s ok, please don’t feel bad.  It is easy, and so many people have said it that I don’t have any idea who has.  But I’m realizing that’s not something I’ll say to anyone with really short hair again– whether she has short hair by choice or necessity, to insinuate the best thing about her hair is ease isn’t the biggest compliment.

That being said, I’ve gotten lots of wonderful compliments.  The best compliments come from complete strangers, and they’re my favorite because I know that these people truly like my hair, they’re not just being nice because they figure at least I’m not bald anymore. My most favorite comment? From a man who works in the cosmetic department at Niemann Marcus.  Enough said.

It’s still weird for me.  I catch my reflection in the mirror or see my shadow on the sidewalk and don’t always recognize myself.  I see myself with long hair in my mind, and yet I’m starting to see myself as I look in Sally’s most recent photos, too.  Like maybe it’s fifty-fifty now, sometimes I think of myself with long hair, sometimes short.  I haven’t quite decided how I’d like my hair to look in 4.9 years.  But for now, I think I’m sticking with short.  It tells a story.  When I see my short hair, I am reminded that I am strong, not only that I’ve gotten past cancer, but that I can feel confident with out the long lovely locks that I once considered a major part of my identity.

Not again…

eyelashes

 

Just did my makeup in preparation for a dinner out with family, and noticed something for the second time.  Have you ever noticed that the first time you see something you don’t love, you try to overlook it– maybe it will go away?  I’m pretty sure I do that.  I seem to remember thinking before when I put on mascara that there was an area of lashes on my left eye that was getting sparse.  I had just been thinking how long my lashes had gotten, that they were better than they ever were pre-chemo.  So the right eye is still pretty great, but there’s that area that’s a little thin on the other side.  I’m still crossing my fingers that it’s completely normal and I’m just being hyper-sensitive, but I’m a little worried that maybe there’s another round to fall out.  Seems unlikely, but the first time they fell out wasn’t until I’d been done with chemo for nearly six weeks, so it’s hard to say.  I’m not looking forward to doing the false eyelashes on a daily basis again, but at least I’ve got some practice, and this pair from Sonia Kashuk did the job without being too spendy.

Here’s hoping I’m just overreacting.  Stay tuned for further updates as events warrant…

Post-surgery Essentials

seat belt cover mastectomy breast cancer

There were a lot of things that I knew I needed to do leading up to my surgery, and I did a pretty good job of getting them taken care of. I came up with a pretty good list of things I thought I’d need at the hospital, and it turned out to be almost perfect. With two glaring omissions.

First of all, percocet is lovely. It really does a good job at knocking out the pain. (And the rest of me, in the process.) But it makes me so itchy. Like all over, can’t make it stop, but only mildly irritating itchy. Not so bad that I wanted to ditch the good drugs, but after a mastectomy, arm motion is pretty limited, so an itchy back is a nightmare. Try though he might, Clay was just too afraid he’d hurt me to scratch hard enough to make the itch go away. I must have mentioned it at some point, so a few days after surgery, a good neighborhood friend showed up at my house with the best gift ever.

back scratcherGlamorous, right? But the simple bamboo back scratcher she picked up at the local hardware store (they have everything!) was exactly what I needed. I wished I’d had it a few days earlier, but it still got loads of use.

The other thing I’d missed I didn’t pick up until a week or so ago. I knew it would probably help, but kept putting it off. After a mastectomy, the last thing you want is a seat belt pressing against your chest. Even though the initial pain is long gone, there’s still a general irritation from the tissue expanders and I hate the way the seat belt feels. Enter: the seat belt cover.

seatbelt coverSeriously, why did I wait so long to get this? I finally picked one up at the automotive store, but for only around six bucks on amazon, it’s ridiculous that I didn’t buy it earlier. It’s not the perfect solution, but for the most part, it lets me drive around with my seat belt where it’s supposed to be instead of me holding it out with my “non-driving” hand.

So while it may be the strangest assortment of gifts ever, I’m thinking that the next friend I know who has a mastectomy will be getting a back scratcher, a seat belt cover, and maybe a can of pringles. Oh, and some lip gloss. Always lip gloss.

Just a conventional girl

run lipstick chemo meds breast cancer northern virginia

For a while, I felt like every other person I spoke with wanted to know when I thought my hair would grow back. I must have answered that question a hundred times. Now I’ve got hair, so that standard question has disappeared. Lately, one question I’m starting to hear more frequently has to do with conventional medicine versus more un-conventional methods of treatment.

I should start with a disclaimer. I’m a scientist. So is my husband. He even did a post-doctoral fellowship with the FDA years ago. We have a pretty healthy respect for “big pharma” and the processes that regulate the development and vetting of drugs. I’ve always worried about herbal and other supplements. While I doubt that they will be as effective as conventional treatment, I don’t worry because I don’t think they couldn’t possibly work. More, I worry that they can work. And they’re not regulated with the same stringency as things that are classified as drugs. Plus, some people feel embarrassed about wanting to use them, or they think their doctor won’t approve of something non-traditional, and so don’t want to tell their doctors. That’s probably my biggest worry—some vitamin and herbal supplements can interact with other drugs, and an oncologist is the best judge of what could put your treatment, or your health, at risk.

I realize it’s easy for me to tout the conventional route. I mean, it worked for me, right? Not only did I make it to my surgery without any hint of remaining tumor, but the chemo didn’t really bother me all that much, either. Would my perspective be different if it hadn’t been so easy and effective? Maybe. I do remember buying a bottle of Evening Primrose Oil to help bring on labor as my due date approached when I was pregnant with Turner. Though I only bought it as the result of an unsolicited suggestion at an OB appointment. (And for the record, it didn’t work.) Desperate times call for desperate measures. I get that.

But still, I have to think that if something considered “non-traditional” was really that effective, the company that makes it would get it into trials so that it could be considered standard of care. That’s how they make money, after all. So for me, I think I’d stick with the traditional, regulated, vetted drugs. At least at first.

Who needs armpits?

 

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When we told the kids that I had cancer, they were of course worried that I would die.  Being scientists, we opted not to tell the kids I had cancer because of some “icky yucky germs” like one children’s book we’d been given suggested. (Seriously?) Instead, I explained to them that cancer cells grow out of control, they don’t stop when they’re supposed to like normal cells.  I told them that people can die from cancer, when the cancer cells are in a part of your body that you need to live and the cancer takes over so that part can’t do its job. They didn’t need to worry, though, I didn’t need my breasts to survive, the doctors could do surgery and take the breast tissue out and I’d be fine, no cancer, and it wouldn’t change the way my body worked.

Last night I was wearing a tank top.  When I stretched, the kids noticed the scar that’s in my armpit from where they sampled my lymph nodes.  They asked about it, and I told them that’s where the doctors checked to make sure that there wasn’t any cancer, and reassured them that there wasn’t.

Turner’s response: “Oh, because you don’t need your armpit.”

I guess he thinks the doctors removed my armpit.